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Adrenoleukodystrophy



Introduction: Adrenoleukodystrophy

Adrenoleukodystrophy: Adrenoleukodystrophy (ALD) is a rare, inherited metabolic disorder that afflicts the young boy Lorenzo Odone, whose story is told in the 1993 film "Lorenzo's oil." In ... more about Adrenoleukodystrophy.

Adrenoleukodystrophy: A rare disorder which has characteristic symptoms of Addison disease (adrenocortical insufficiency) and Schilder disease (cerebral sclerosis). Bronze skin, brain sclerosis and demyelination are the main symptoms. More detailed information about the symptoms, causes, and treatments of Adrenoleukodystrophy is available below.

Symptoms of Adrenoleukodystrophy

See full list of 46 symptoms of Adrenoleukodystrophy

Home Diagnostic Testing

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Medical Textbooks Online about Adrenoleukodystrophy

16 MEDICAL BOOKS ONLINE! Full text.
Free access (no registration).
  • "Algorithmic Diagnosis of Symptoms and Signs"
  • "In a Page: Signs and Symptoms"
  • "Handbook of Signs & Symptoms (Third Edition)"
  • "Handbook of Signs & Symptoms (Third Edition)"
  • "A Pocket Manual of Differential Diagnosis"
  • "A Pocket Manual of Differential Diagnosis"
  • "Professional Guide to Diseases (Eighth Edition)"
  • "Professional Guide to Diseases (Eighth Edition)"
  • "Professional Guide to Diseases (Eighth Edition)"
  • "Professional Guide to Diseases (Eighth Edition)"
  • "Professional Guide to Diseases (Eighth Edition)"
  • "Professional Guide to Signs & Symptoms (Fifth Edition)"
  • "Professional Guide to Signs & Symptoms (Fifth Edition)"
  • "Professional Guide to Signs & Symptoms (Fifth Edition)"
  • "Field Guide to Bedside Diagnosis"
  • "Handbook of Diseases"
  • "Handbook of Diseases"
  • "Handbook of Diseases"
  • "Handbook of Diseases"
  • "Signs & Symptoms: A 2-in-1 Reference for Nurses"
  • "Signs & Symptoms: A 2-in-1 Reference for Nurses"
  • "Nursing: Interpreting Signs and Symptoms"
  • "Nursing: Interpreting Signs and Symptoms"

Book excerpts: Copyright © 2008 Lippincott Williams & Wilkins. All rights reserved.

Causes of Adrenoleukodystrophy

Read more about causes of Adrenoleukodystrophy.

Videos for Adrenoleukodystrophy

Taking Part in CML Trials

Taking Part in CML TrialsHear one woman's story as she participates in a clinical trial to help fight CML.

Monitoring CML

Monitoring CMLA wide range of laboratory tests is used to monitor a patient's response to therapy for chronic myeloid leukemia. Listen to experts explain the...

 

Responses to CML Treatments

Responses to CML TreatmentsOne of the greatest success stories in cancer treatment occurs in people with chronic myeloid leukemia. But treatments don't always work well in...

Emerging Therapies for CML

Emerging Therapies for CMLA majority of people with CML do well with treatments. But a few will develop serious side effects or develop drug resistance. Listen to experts...

 
See full list of 9 related videos

Patient Surveys for Adrenoleukodystrophy

Prognosis for Adrenoleukodystrophy

Prognosis for Adrenoleukodystrophy: Prognosis for patients with ALD is generally poor except after successful bone marrow transplantation. Death may occur within 1 to 10 years after the onset of symptoms due to disease progression. (Source: excerpt from NINDS Adrenoleukodystrophy Information Page: NINDS)

More about prognosis of Adrenoleukodystrophy

Reseach about Adrenoleukodystrophy

Visit our research pages for current research about Adrenoleukodystrophy treatments.

Clinical Trials for Adrenoleukodystrophy

The US based website ClinicalTrials.gov lists information on both federally and privately supported clinical trials using human volunteers.

Some of the clinical trials listed on ClinicalTrials.gov for Adrenoleukodystrophy include:

See full list of 9 Clinical Trials for Adrenoleukodystrophy

Statistics for Adrenoleukodystrophy

Types of Adrenoleukodystrophy

Read more about Types of Adrenoleukodystrophy

Medical Guidebooks and Ebooks for Adrenoleukodystrophy

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Stories from Users Related to Adrenoleukodystrophy

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User Interactive Forums

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Article Excerpts about Adrenoleukodystrophy

Genes and Disease by the National Center for Biotechnology (Excerpt)

Adrenoleukodystrophy (ALD) is a rare, inherited metabolic disorder that afflicts the young boy Lorenzo Odone, whose story is told in the 1993 film "Lorenzo's oil." In this disease, the fatty covering (myelin sheath) on nerve fibers in the brain is lost, and the adrenal gland degenerates, leading to progressive neurological disability and death. (Source: Genes and Disease by the National Center for Biotechnology)

NINDS Adrenoleukodystrophy Information Page: NINDS (Excerpt)

Adrenoleukodystrophy (ALD) is a rare, genetic disorder characterized by the breakdown or loss of the myelin sheath surrounding nerve cells in the brain and progressive dysfunction of the adrenal gland. ALD is one of a group of genetic disorders called the leukodystrophies that cause damage to the myelin sheath, the fatty covering — which acts as an insulator — on nerve fibers in the brain. (Source: excerpt from NINDS Adrenoleukodystrophy Information Page: NINDS)

Definitions of Adrenoleukodystrophy:

A syndrome combining the characteristics of adrenocortical insufficiency (Addison disease) with those of cerebral sclerosis (Schilder disease). Skin bronzing and sclerosis of the brain and demyelination are the principal manifestations. - (Source - Diseases Database)

Adrenoleukodystrophy is listed as a "rare disease" by the Office of Rare Diseases (ORD) of the National Institutes of Health (NIH). This means that Adrenoleukodystrophy, or a subtype of Adrenoleukodystrophy, affects less than 200,000 people in the US population.
Source - National Institutes of Health (NIH)

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