Prevalence and Incidence of Androgen Insensitivity Syndrome

Prevalance of Androgen Insensitivity Syndrome:

very rare ... see also overview of Androgen Insensitivity Syndrome.

Androgen Insensitivity Syndrome: Rare Disease

Androgen Insensitivity Syndrome is listed as a "rare disease" by the Office of Rare Diseases (ORD) of the National Institutes of Health (NIH). This means that Androgen Insensitivity Syndrome, or a subtype of Androgen Insensitivity Syndrome, affects less than 200,000 people in the US population.

Ophanet, who are a consortium of European partners, currently defines a condition rare when if affects 1 person per 2,000. They list Androgen Insensitivity Syndrome as a "rare disease". More information about Androgen Insensitivity Syndrome is available from Orphanet

About prevalence and incidence statistics:

The term 'prevalence' of Androgen Insensitivity Syndrome usually refers to the estimated population of people who are managing Androgen Insensitivity Syndrome at any given time. The term 'incidence' of Androgen Insensitivity Syndrome refers to the annual diagnosis rate, or the number of new cases of Androgen Insensitivity Syndrome diagnosed each year. Hence, these two statistics types can differ: a short-lived disease like flu can have high annual incidence but low prevalence, but a life-long disease like diabetes has a low annual incidence but high prevalence. For more information see about prevalence and incidence statistics.

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