Cure Research for Ehlers-Danlos syndrome

Latest Treatments for Ehlers-Danlos syndrome

Some of the more recent treatments for Ehlers-Danlos syndrome include:

• Symptomatic
• Prolonged wound fixation
• Conservative surgical repair
• more treatments...»

Cure Research discussion for Ehlers-Danlos syndrome:

Questions and Answers about Heritable Disorders of Connective Tissue: NIAMS (Excerpt)

The NIAMS is conducting an in-depth natural history study of people who have Marfan syndrome (which leads to abnormally long bones), nail-patella syndrome (a congenital skeletal disorder), Stickler syndrome (which causes eye and joint problems), and Ehlers-Danlos syndrome (which causes skin and blood vessel problems). All of these disorders have multiple, interrelated symptoms. NIAMS scientists are studying these people closely and over a long period to get a more complete picture of the diseases. They hope to improve their understanding of the genetic origins of the symptoms, of disease progression, and of mutations in patients and their relatives. Scientists expect their findings to apply to other HDCTs as well. (Source: excerpt from Questions and Answers about Heritable Disorders of Connective Tissue: NIAMS)

Questions and Answers about Heritable Disorders of Connective Tissue: NIAMS (Excerpt)

The National Human Genome Research Institute is conducting a clinical study of mind-body therapy for chronic pain in people with Ehlers-Danlos syndrome. At the National Eye Institute, research is being supported on alterations in the gene that causes pseudoxanthoma elasticum (PXE) and on which variations cause different signs and symptoms. (Source: excerpt from Questions and Answers about Heritable Disorders of Connective Tissue: NIAMS)

Ehlers-Danlos syndrome Treatment: Book Excerpts

• Treatment - Dry Skin (Xerosis)
• Treatment - Genital Skin Lesions
• Treatment - Skin Pigmentation (Decreased)
• Treatment - Staphylococcal scalded skin syndrome
• Patient counseling - Skin turgor, decreased
• Patient counseling - Skin, mottled
• Patient counseling - Skin, scaly
• Treatment - Staphylococcal scalded skin syndrome
• Nursing considerations - Skin, clammy
• Nursing considerations - Skin, mottled
• Patient counseling - Skin, bronze
• Patient counseling - Skin, clammy
• Patient counseling - Skin, mottled
• Patient counseling - Skin, scaly
• Nursing considerations - Skin turgor, decreased
• Nursing considerations - Skin, clammy
• Nursing considerations - Skin, mottled
• Nursing considerations - Skin, scaly

Clinical Trials for Ehlers-Danlos syndrome

Some of the clinical trials for Ehlers-Danlos syndrome include:

• Mind-Body Therapy for Pain in Ehlers-Danlos Syndrome - This study has been completed (Current: 23 Nov 2006)
• Celiprolol in Patients With Ehlers-Danlos Syndrome, Vascular Type - This study is currently recruiting patients (Current: 23 Nov 2006) - celiprolol
• Study of Heritable Connective Tissue Disorders - This study has been completed (Current: 23 Nov 2006)
• Manifestations of Heritable Disorders of Connective Tissue - This study is currently recruiting patients (Current: 23 Nov 2006)
• more trials...»

Evidence Based Medicine Research for Ehlers-Danlos syndrome

Medical research papers related to Ehlers-Danlos syndrome include:

• Ehlers-Danlos syndrome, type 4
• Loeys-Dietz syndrome
• Beighton score
• Hypermobility
• Transforming growth factor beta
• Secondary spontaneous pneumothorax
• The diagnosis, evaluation, and management of von Willebrand disease.
• For a woman with a history of mitral regurgitation, who is allergic to penicillin, is antibiotic prophylaxis required for insertion of an intrauterine device and if so what antibiotics should be given?
• Endovascular neurointerventional procedures
• Rotigotine
• Child Abuse: Approach and Management
• Ehlers-Danlos Syndrome
• Ehlers-Danlos Syndrome (Follow-up)
• Ehlers-Danlos Syndrome (Overview)
• Ehlers-Danlos Syndrome (Treatment)
• Ehlers-Danlos Syndrome (Diagnosis)
• Ehlers-Danlos Syndrome (Diagnosis)
• Ehlers-Danlos Syndrome (Follow-up)
• Ehlers-Danlos Syndrome (Treatment)
• Ehlers-Danlos Syndrome (Overview)
• Aneurysm syndromes caused by mutations in the TGF-beta receptor.
• Connective Tissue Diseases In Pregnancy
• Pseudoxanthoma elasticum
• Dislocation, Mandible (Overview)
• Mandibular Dislocation
• Orthopaedic Problems in Childhood
• Chest Pain
• May 2007 Update
• Dislocation, Mandible (Diagnosis)
• Aortic Dissection

Click here to find more evidence-based articles on the TRIP Database

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