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Diseases » Incontinentia Pigmenti » Prevalence

Prevalence and Incidence of Incontinentia Pigmenti

Contents

Prevalance of Incontinentia Pigmenti:

700 - 1,000 cases of incontinentia pigmenti have been reported, Genetics Home Reference website ... see also overview of Incontinentia Pigmenti.

Prevalance Rate:

approx 1 in 388,571 or 0.00% or 700 people in USA [Source statistic for calcuation: "700 - 1,000 cases of incontinentia pigmenti have been reported, Genetics Home Reference website" -- see also general information about data sources]

Incontinentia Pigmenti: Rare Disease

Incontinentia Pigmenti is listed as a "rare disease" by the Office of Rare Diseases (ORD) of the National Institutes of Health (NIH). This means that Incontinentia Pigmenti, or a subtype of Incontinentia Pigmenti, affects less than 200,000 people in the US population.

Ophanet, who are a consortium of European partners, currently defines a condition rare when if affects 1 person per 2,000. They list Incontinentia Pigmenti as a "rare disease". More information about Incontinentia Pigmenti is available from Orphanet

About prevalence and incidence statistics:

The term 'prevalence' of Incontinentia Pigmenti usually refers to the estimated population of people who are managing Incontinentia Pigmenti at any given time. The term 'incidence' of Incontinentia Pigmenti refers to the annual diagnosis rate, or the number of new cases of Incontinentia Pigmenti diagnosed each year. Hence, these two statistics types can differ: a short-lived disease like flu can have high annual incidence but low prevalence, but a life-long disease like diabetes has a low annual incidence but high prevalence. For more information see about prevalence and incidence statistics.