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Prevalence and Incidence of Interstitial cystitis



Prevalance of Interstitial cystitis:

847,000 in the USA 1988-1994 (Weighted Analysis of 1988-1994 National Health and Nutrition Survey, 2003)

Prevalance Rate:

approx 1 in 321 or 0.31% or 847,000 people in USA [about data]

Ophanet, who are a consortium of European partners, currently defines a condition rare when if affects 1 person per 2,000. They list Interstitial cystitis as a "rare disease". More information about Interstitial cystitis is available from Orphanet

Prevalance of Interstitial cystitis:

About 700,000 people (90 percent of whom are women) (Source: excerpt from Kidney and Urologic Diseases Statistics for the United States: NIDDK) ... "Estimates of the number of people who have IC run as high as 500,000, but no one knows for sure how many people have it. (Source: excerpt from Interstitial Cystitis (Bladder disorder): NWHIC)

Prevelance statistics for Interstitial cystitis:

The following statistics relate to the prevalence of Interstitial cystitis:

  • 700,000 people (NIDDK)
  • 94% of adults who self-reported being diagnosed with interstitial cystitis were women in the US 1988-1994 (Weighted Analysis of 1988-1994, NHANES, NIDDK)
  • 847,000 adults self-reported interstitial cystitis in the US 1988-1994 (Weighted Analysis of 1988-1994, NHANES, NIDDK)

About prevalence and incidence statistics:

The term 'prevalence' of Interstitial cystitis usually refers to the estimated population of people who are managing Interstitial cystitis at any given time. The term 'incidence' of Interstitial cystitis refers to the annual diagnosis rate, or the number of new cases of Interstitial cystitis diagnosed each year. Hence, these two statistics types can differ: a short-lived disease like flu can have high annual incidence but low prevalence, but a life-long disease like diabetes has a low annual incidence but high prevalence. For more information see about prevalence and incidence statistics.

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