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What is Parry Romberg Syndrome?

What is Parry Romberg Syndrome?

  • Parry Romberg Syndrome: Wasting away of one side of the face.
  • Parry Romberg Syndrome: A syndrome characterized by slowly progressive unilateral atrophy of facial subcutaneous fat, muscle tissue, skin, cartilage, and bone. The condition typically progresses over a period of 2-10 years and then stabilizes.
    Source - Diseases Database

Parry Romberg Syndrome is listed as a "rare disease" by the Office of Rare Diseases (ORD) of the National Institutes of Health (NIH). This means that Parry Romberg Syndrome, or a subtype of Parry Romberg Syndrome, affects less than 200,000 people in the US population.
Source - National Institutes of Health (NIH)

Ophanet, a consortium of European partners, currently defines a condition rare when it affects 1 person per 2,000. They list Parry Romberg Syndrome as a "rare disease".
Source - Orphanet

Parry Romberg Syndrome: Introduction

How many people get Parry Romberg Syndrome?

Prevalance of Parry Romberg Syndrome: rare

How serious is Parry Romberg Syndrome?

Prognosis of Parry Romberg Syndrome: condition usually progresses for a while then remains static indefinitely
Complications of Parry Romberg Syndrome: see complications of Parry Romberg Syndrome
Prognosis of Parry Romberg Syndrome: The prognosis for individuals with Parry-Romberg syndrome varies. In some cases, the atrophy stops before the entire face is affected. In mild cases, the disorder usually causes no disability other than the cosmetic effects. (Source: excerpt from NINDS Parry Romberg Syndrome Information Page: NINDS)

What causes Parry Romberg Syndrome?

Causes of Parry Romberg Syndrome: see causes of Parry Romberg Syndrome

What are the symptoms of Parry Romberg Syndrome?

Symptoms of Parry Romberg Syndrome: see symptoms of Parry Romberg Syndrome

Complications of Parry Romberg Syndrome: see complications of Parry Romberg Syndrome

Onset of Parry Romberg Syndrome: usually during the 2nd decade

Parry Romberg Syndrome: Testing

Diagnostic testing: see tests for Parry Romberg Syndrome.

Misdiagnosis: see misdiagnosis and Parry Romberg Syndrome.

How is it treated?

Treatments for Parry Romberg Syndrome: see treatments for Parry Romberg Syndrome

Organs Affected by Parry Romberg Syndrome:

Organs and body systems related to Parry Romberg Syndrome include:

Name and Aliases of Parry Romberg Syndrome

Main name of condition: Parry Romberg Syndrome

Other names or spellings for Parry Romberg Syndrome:

Progressive Hemifacial Atrophy, progressive facial hemiatrophy, progressive laminar aplasia, Romberg syndrome, PHA, Romberg hemi-facial atrophy

Facial hemiatrophy, Hemifacial atrophy, progressive, Romberg's trophoneurosis Source - Diseases Database

Facial hemiatrophy, PHA (Progressive hemifacial atrophy), Progressive hemifacial atrophy, Romberg hemi-facial atrophy, Romberg hemi-facial atrophy, Facial hemiatrophy, PHA (Progressive hemifacial atrophy)
Source - Office of Rare Diseases (ORD) of the National Institutes of Health (NIH)

Research the causes of these diseases that are similar to, or related to, Parry Romberg Syndrome:


 » Next page: Online Medical Textbooks for Parry Romberg Syndrome

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