What is Parry Romberg Syndrome?
What is Parry Romberg Syndrome?
- Parry Romberg Syndrome: Wasting away of one side of the face.
- Parry Romberg Syndrome: A syndrome characterized by slowly progressive unilateral atrophy of facial subcutaneous fat, muscle tissue, skin, cartilage, and bone. The condition typically progresses over a period of 2-10 years and then stabilizes.
Source - Diseases Database
Parry Romberg Syndrome is listed as a "rare disease" by the Office of
Rare Diseases (ORD) of the National Institutes of Health
(NIH). This means that Parry Romberg Syndrome, or a subtype of Parry Romberg Syndrome,
affects less than 200,000 people in the US population.
Source - National Institutes of Health (NIH)
Ophanet, a consortium of European partners,
currently defines a condition rare when it affects 1 person per 2,000.
They list Parry Romberg Syndrome as a "rare disease".
Source - Orphanet
Parry Romberg Syndrome: Introduction
How many people get Parry Romberg Syndrome?
Prevalance of Parry Romberg Syndrome: rare
How serious is Parry Romberg Syndrome?
Prognosis of Parry Romberg Syndrome: condition usually progresses for a while then remains static indefinitely
Complications of Parry Romberg Syndrome:
see complications of Parry Romberg Syndrome
Prognosis of Parry Romberg Syndrome:
The
prognosis for individuals with Parry-Romberg syndrome varies. In some
cases, the atrophy stops before the entire face is affected. In mild
cases, the disorder usually causes no disability other than the cosmetic
effects.
(Source: excerpt from NINDS Parry Romberg Syndrome Information Page: NINDS)
What causes Parry Romberg Syndrome?
Causes of Parry Romberg Syndrome: see causes of Parry Romberg Syndrome
What are the symptoms of Parry Romberg Syndrome?
Symptoms of Parry Romberg Syndrome:
see symptoms of Parry Romberg Syndrome
Complications of Parry Romberg Syndrome:
see complications of Parry Romberg Syndrome
Onset of Parry Romberg Syndrome: usually during the 2nd decade
Parry Romberg Syndrome: Testing
Diagnostic testing: see tests for Parry Romberg Syndrome.
Misdiagnosis: see misdiagnosis and Parry Romberg Syndrome.
How is it treated?
Treatments for Parry Romberg Syndrome:
see treatments for Parry Romberg Syndrome
Organs Affected by Parry Romberg Syndrome:
Organs and body systems related to Parry Romberg Syndrome include:
Name and Aliases of Parry Romberg Syndrome
Main name of condition: Parry Romberg Syndrome
Other names or spellings for Parry Romberg Syndrome:
Progressive Hemifacial Atrophy, progressive facial hemiatrophy, progressive laminar aplasia, Romberg syndrome, PHA, Romberg hemi-facial atrophy
Facial hemiatrophy, Hemifacial atrophy, progressive, Romberg's trophoneurosis
Source - Diseases Database
Facial hemiatrophy, PHA (Progressive hemifacial atrophy), Progressive hemifacial atrophy, Romberg hemi-facial atrophy, Romberg hemi-facial atrophy, Facial hemiatrophy, PHA (Progressive hemifacial atrophy)
Source - Office of Rare Diseases (ORD) of the National Institutes of Health (NIH)
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