rare ... see also overview of Parry Romberg Syndrome.
Parry Romberg Syndrome is listed as a "rare disease" by the Office of Rare Diseases (ORD) of the National Institutes of Health (NIH). This means that Parry Romberg Syndrome, or a subtype of Parry Romberg Syndrome, affects less than 200,000 people in the US population.
Ophanet, who are a consortium of European partners, currently defines a condition rare when if affects 1 person per 2,000. They list Parry Romberg Syndrome as a "rare disease". More information about Parry Romberg Syndrome is available from Orphanet
The term 'prevalence' of Parry Romberg Syndrome usually refers to the estimated population of people who are managing Parry Romberg Syndrome at any given time. The term 'incidence' of Parry Romberg Syndrome refers to the annual diagnosis rate, or the number of new cases of Parry Romberg Syndrome diagnosed each year. Hence, these two statistics types can differ: a short-lived disease like flu can have high annual incidence but low prevalence, but a life-long disease like diabetes has a low annual incidence but high prevalence. For more information see about prevalence and incidence statistics.
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