Prevalence and Incidence of Sandhoff Disease
Prevalance of Sandhoff Disease:
rare ... see also overview of Sandhoff Disease.
Sandhoff Disease: Rare Disease
Sandhoff Disease is listed as a "rare disease" by the Office of
Rare Diseases (ORD) of the National Institutes of Health
(NIH). This means that Sandhoff Disease, or a subtype of Sandhoff Disease,
affects less than 200,000 people in the US population.
Ophanet, who are a consortium of European partners,
currently defines a condition rare when if affects 1 person per 2,000.
They list Sandhoff Disease as a "rare disease".
More information about Sandhoff Disease is available from Orphanet
About prevalence and incidence statistics:
The term 'prevalence' of Sandhoff Disease usually refers to the estimated population
of people who are managing Sandhoff Disease at any given time.
The term 'incidence' of Sandhoff Disease refers to the annual diagnosis rate,
or the number of new cases of Sandhoff Disease diagnosed each year.
Hence, these two statistics types can differ:
a short-lived disease like flu can have high annual incidence but low prevalence,
but a life-long disease like diabetes has a low annual incidence but high prevalence.
For more information see about prevalence and incidence statistics.
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