Sarcoidosis is listed as a "rare disease" by the Office of
Rare Diseases (ORD) of the National Institutes of Health
(NIH). This means that Sarcoidosis, or a subtype of Sarcoidosis,
affects less than 200,000 people in the US population.
Source - National Institutes of Health (NIH)
Ophanet, a consortium of European partners,
currently defines a condition rare when it affects 1 person per 2,000.
They list Sarcoidosis as a "rare disease".
Source - Orphanet
Types of Sarcoidosis:
Broader types of Sarcoidosis:
Prevalance of Sarcoidosis: 20 per 100,000 overall; 5 in 100,000 white people; 40 out of 100,000 black people; Scandinavia 64 out of 100,000 people
Prevalance Rate of Sarcoidosis: approx 1 in 5,000 or 0.02% or 54,400 people in USA [about data]
Incidence (annual) of Sarcoidosis: 20 per 100,000 in the city, less in the country.
Incidence Rate of Sarcoidosis: approx 1 in 5,000 or 0.02% or 54,400 people in USA [about data]
Prevalance of Sarcoidosis:
The best estimate
today is that about 5 in 100,000 white people in the United States have
sarcoidosis. Among black people, it occurs more frequently, in probably 40 out
of 100,000 people.
(Source: excerpt from NHLBI, Sarcoidosis: NHLBI)
Incidence of Sarcoidosis: Overall, there appear to be 20 cases per 100,000 in cities on the east coast
and somewhat fewer in rural locations. Some scientists, however, believe that
these figures greatly underestimated the percentage of the U.S. population with
sarcoidosis.
(Source: excerpt from NHLBI, Sarcoidosis: NHLBI)
Patient Profile for Sarcoidosis: Typically young adults. Rarely under 10 or over 60.
Profile for Sarcoidosis: Anyone can get sarcoidosis. It occurs in all races and in both sexes. Nevertheless, the risk is greater if you are a young black adult, especially a black woman, or of Scandinavian, German, Irish, or Puerto Rican origin. No one knows why. (Source: excerpt from NHLBI, Sarcoidosis: NHLBI) ... Sarcoidosis mainly affects people between 20 to 40 years of age. White women are just as likely as white men to get sarcoidosis, but the black female gets sarcoidosis two times as often as the black male. (Source: excerpt from NHLBI, Sarcoidosis: NHLBI)
Race Profile for Sarcoidosis: More common in African Americans than Caucasian people.
Prognosis of Sarcoidosis: Often good. Many cases heal (60-70%). Most other cases are bearable. Fatal complications 5-10% of patients.
Complications of Sarcoidosis:
see complications of Sarcoidosis
Prognosis of Sarcoidosis: Sarcoidosis is usually not crippling. It often goes away by itself, with most
cases healing in 24 to 36 months. Even when sarcoidosis lasts longer, most
patients can go about their lives as usual.
(Source: excerpt from NHLBI, Sarcoidosis: NHLBI)
Deaths for Sarcoidosis: 572 deaths (NHLBI 1999)
Causes of Sarcoidosis: see causes of Sarcoidosis
Cause of Sarcoidosis: Unknown. Possibly autoimmune.
Causes of Sarcoidosis: No one yet knows what causes sarcoidosis. The disease can appear suddenly and
disappear. Or it can develop gradually and go on to produce symptoms that come
and go, sometimes for a lifetime.
(Source: excerpt from NHLBI, Sarcoidosis: NHLBI)
Symptoms of Sarcoidosis: see symptoms of Sarcoidosis
Complications of Sarcoidosis: see complications of Sarcoidosis
More information:
see contagiousness of Sarcoidosis
Inheritance:
see inheritance of Sarcoidosis
Diagnostic testing: see tests for Sarcoidosis.
Misdiagnosis: see misdiagnosis and Sarcoidosis.
Treatments for Sarcoidosis:
see treatments for Sarcoidosis
Research for Sarcoidosis:
see research for Sarcoidosis
Hospitalizations for Sarcoidosis: 6,000 (NHLBI 1999)
Hospitalization statistics for Sarcoidosis:
The following are statistics from various sources about hospitalizations and Sarcoidosis:
Organs and body systems related to Sarcoidosis include:
Main name of condition: Sarcoidosis
Class of Condition for Sarcoidosis: autoimmune possibly
Hutchinson's disease, Boeck's disease, Schaumann's syndrome, Schaumann syndrome, Sarcoid, Boeck's sarcoid, Boeck sarcoid, Boeck disease, Besnier-Boeck-Schaumann syndrome, Besnier-Boeck-Schaumann disease
Besnier-Boeck-Schaumann disease, Boeck's sarcoid, Lofgren syndrome
Source - Diseases Database
Sarcoid of Boeck, Schaumann's disease
Source - Office of Rare Diseases (ORD) of the National Institutes of Health (NIH)
Research the causes of these diseases that are similar to, or related to, Sarcoidosis:
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