Tuberous sclerosis is listed as a "rare disease" by the Office of
Rare Diseases (ORD) of the National Institutes of Health
(NIH). This means that Tuberous sclerosis, or a subtype of Tuberous sclerosis,
affects less than 200,000 people in the US population.
Source - National Institutes of Health (NIH)
Ophanet, a consortium of European partners,
currently defines a condition rare when it affects 1 person per 2,000.
They list Tuberous sclerosis as a "rare disease".
Source - Orphanet
Tuberous sclerosis: Introduction
Broader types of Tuberous sclerosis:
Prevalance of Tuberous sclerosis: less than 1 in 10,000
Prevalance Rate of Tuberous sclerosis: approx 1 in 10,000 or 0.01% or 27,200 people in USA [about data]
Complications of Tuberous sclerosis:
see complications of Tuberous sclerosis
Prognosis of Tuberous sclerosis: Patients may experience a few or all of the symptoms with varying degrees of severity.
(Source: Genes and Disease by the National Center for Biotechnology)
...
The
prognosis for individuals with tuberous sclerosis varies depending on the
severity of symptoms. There is no cure.
(Source: excerpt from NINDS Tuberous Sclerosis Information Page: NINDS)
Causes of Tuberous sclerosis: see causes of Tuberous sclerosis
Symptoms of Tuberous sclerosis: see symptoms of Tuberous sclerosis
Complications of Tuberous sclerosis: see complications of Tuberous sclerosis
Onset of Tuberous sclerosis: childhood
Contagion of genetic conditions:
generally not; see details in contagion of genetic diseases.
Inheritance:
see inheritance of Tuberous sclerosis
Inheritance of genetic conditions: see details in inheritance of genetic diseases.
Diagnostic testing: see tests for Tuberous sclerosis.
Misdiagnosis: see misdiagnosis and Tuberous sclerosis.
Treatments for Tuberous sclerosis:
see treatments for Tuberous sclerosis
Research for Tuberous sclerosis:
see research for Tuberous sclerosis
Organs and body systems related to Tuberous sclerosis include:
Main name of condition: Tuberous sclerosis
Class of Condition for Tuberous sclerosis: genetic
adenoma sebaceum, Bourneville disease, Bourneville syndrome, Bourneville-Brissaud disease, Pringle disease, epiploia, hereditary milpitple system hamartomatosis, neurinomatosis centralis, neuromatosis universalis, neurospongioplastosis diffusa, phacomatosis, sclerosis tuberosa, spongioblastosis circumscripta, tuberose sclerosis, Bourneville-Brissaud syndrome, Bourneville phakomatosis, epiloia, tuberous sclerosis complex, cerebral sclerosis, Bourneville's syndrome, TSC, TS
Bourneville's disease, Bourneville-Pringle syndrome, Epiloia
Source - Diseases Database
TS (Tuberous sclerosis), TSC, Tuberous sclerosis complex
Source - Office of Rare Diseases (ORD) of the National Institutes of Health (NIH)
Research the causes of these diseases that are similar to, or related to, Tuberous sclerosis:
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