less than 1 in 10,000 ... see also overview of Tuberous sclerosis.
approx 1 in 10,000 or 0.01% or 27,200 people in USA [Source statistic for calcuation: "less than 1 in 10,000" -- see also general information about data sources]
Tuberous sclerosis is listed as a "rare disease" by the Office of Rare Diseases (ORD) of the National Institutes of Health (NIH). This means that Tuberous sclerosis, or a subtype of Tuberous sclerosis, affects less than 200,000 people in the US population.
Ophanet, who are a consortium of European partners, currently defines a condition rare when if affects 1 person per 2,000. They list Tuberous sclerosis as a "rare disease". More information about Tuberous sclerosis is available from Orphanet
16 MEDICAL BOOKS ONLINE! Review excerpts from medical books online, free, without registration, for more information about the prevalence and/or incidence of Tuberous sclerosis.
No gender predilection
Current estimates suggest an incidence of 1 in 5,000 to 1 in 15,000 births. ~60–70% of cases reflect sporadic mutation; 30–40% of cases are familial.
Source: The 5-Minute Pediatric Consult, 2008
The term 'prevalence' of Tuberous sclerosis usually refers to the estimated population of people who are managing Tuberous sclerosis at any given time. The term 'incidence' of Tuberous sclerosis refers to the annual diagnosis rate, or the number of new cases of Tuberous sclerosis diagnosed each year. Hence, these two statistics types can differ: a short-lived disease like flu can have high annual incidence but low prevalence, but a life-long disease like diabetes has a low annual incidence but high prevalence. For more information see about prevalence and incidence statistics.
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