rare ... see also overview of Von Hippel-Lindau Disease.
Von Hippel-Lindau Disease is listed as a "rare disease" by the Office of Rare Diseases (ORD) of the National Institutes of Health (NIH). This means that Von Hippel-Lindau Disease, or a subtype of Von Hippel-Lindau Disease, affects less than 200,000 people in the US population.
Ophanet, who are a consortium of European partners, currently defines a condition rare when if affects 1 person per 2,000. They list Von Hippel-Lindau Disease as a "rare disease". More information about Von Hippel-Lindau Disease is available from Orphanet
The term 'prevalence' of Von Hippel-Lindau Disease usually refers to the estimated population of people who are managing Von Hippel-Lindau Disease at any given time. The term 'incidence' of Von Hippel-Lindau Disease refers to the annual diagnosis rate, or the number of new cases of Von Hippel-Lindau Disease diagnosed each year. Hence, these two statistics types can differ: a short-lived disease like flu can have high annual incidence but low prevalence, but a life-long disease like diabetes has a low annual incidence but high prevalence. For more information see about prevalence and incidence statistics.
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