Von Willebrand disease

Introduction: Von Willebrand disease

Von Willebrand disease: A rare inherited blood coagulation disorder characterized by a deficiency or defect in plasma protein called the von Willebrand factor which leads to bleeding problems. More detailed information about the symptoms, causes, and treatments of Von Willebrand disease is available below.

Symptoms of Von Willebrand disease

• Bleeding easily
• Frequent nosebleeds
• Bruising easily
• Excessive bleeding - such as after surgery, injury or dental work
• Heavy menstrual bleeding

See full list of 19 symptoms of Von Willebrand disease

Home Diagnostic Testing

Home medical testing related to Von Willebrand disease:

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Medical Textbooks Online about Von Willebrand disease

Book excerpts: Copyright © 2008 Lippincott Williams & Wilkins. All rights reserved.

Less Common Symptoms of Von Willebrand disease

• Hemarthrosis

Read more about symptoms of Von Willebrand disease

Diagnostic Tests for Von Willebrand disease

• Coagulation blood test

Read more about tests for Von Willebrand disease

Wrongly Diagnosed with Von Willebrand disease?

• Misdiagnosis of Von Willebrand disease
• Failure to diagnose Von Willebrand disease
• Underlying causes of Von Willebrand disease (possibly wrongly diagnosed)
• Failure to diagnose Von Willebrand disease

Misdiagnosis and Von Willebrand disease

Unnecessary hysterectomies due to undiagnosed bleeding disorder in women: The bleeding disorder called Von Willebrand's disease is quite common in women, but often fails to be correctly diagnosed. Women with the condition tend to have heavy periods, since they actually have a bleeding disorder. Severe afflictions may result in the women receiving a hysterectomy unnecessarily, when the underlying cause has not been identified. See the introduction to Von Willebrand's disease and bleeding disorder....read more »

Read more about Misdiagnosis and Von Willebrand disease

Causes of Von Willebrand disease

Read more about causes of Von Willebrand disease.

More information about causes of Von Willebrand disease:

• Von Willebrand disease as a symptom

Videos for Von Willebrand disease

Patient Surveys for Von Willebrand disease

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Prognosis for Von Willebrand disease

Prognosis for Von Willebrand disease: Can be treated effectively with medication.

More about prognosis of Von Willebrand disease

Reseach about Von Willebrand disease

Visit our research pages for current research about Von Willebrand disease treatments.

Clinical Trials for Von Willebrand disease

The US based website ClinicalTrials.gov lists information on both federally and privately supported clinical trials using human volunteers.

Some of the clinical trials listed on ClinicalTrials.gov for Von Willebrand disease include:

• Phase II Study of IL-11 (Neumega) in Von Willebrand Disease - This study is currently recruiting patients (Current: 23 Nov 2006) - rhIL-11 (recombinant interleukin-11, Neumega)
• A Study With OPTIVATE in People With Von Willebrand Disease - This study is not yet open for patient recruitment (Current: 23 Nov 2006) - Optivate
• Treatment and Management of Women With Bleeding Disorders - This study is currently recruiting patients (Current: 23 Nov 2006) - Tranexamic Acid,Desmopressin Acetate
• Phase I Study of Human Von Willebrand Factor for Von Willebrand's Disease - This study has been completed (Current: 23 Nov 2006) - von Willebrand factor
• Study of Safety and Efficacy of Antihemophilic Factor/Von Willebrand Factor Complex in Surgical Subjects With Von Willebrand Disease (vWD) - This study is no longer recruiting patients (Current: 23 Nov 2006) - Blood coagulation Factor VIII and vWF, human

See full list of 6 Clinical Trials for Von Willebrand disease

Statistics for Von Willebrand disease

• Medical statistics for Von Willebrand disease
• Prevalence and incidence statistics for Von Willebrand disease
• Death and Mortality statistics for Von Willebrand disease
• Society statistics for Von Willebrand disease

Stories from Users Related to Von Willebrand disease

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• von willebrands???

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User Interactive Forums

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Definitions of Von Willebrand disease:

Von Willebrand disease is listed as a "rare disease" by the Office of Rare Diseases (ORD) of the National Institutes of Health (NIH). This means that Von Willebrand disease, or a subtype of Von Willebrand disease, affects less than 200,000 people in the US population.
Source - National Institutes of Health (NIH)

Ophanet, a consortium of European partners, currently defines a condition rare when it affects 1 person per 2,000. They list Von Willebrand disease as a "rare disease".
Source - Orphanet